Here’s why I get frustrated. There are so many things I feel I “should” be doing…but sometimes it’s all I can do to get up out of bed. BUT I DO GET UP OUT OF BED. That’s huge!
I should be looking for a job for summer. But it’s all I can do to manage all my doctor appointments. Plus I am having the kidney ultrasound/screening on Tuesday and I know one of my virtual friends from the online support group has/had kidney cancer and has only one kidney. That concerns me, greatly.
I’m tired of headaches. Just plain effing tired of them. But Mom brought up a good point because we were just outside in the sun and she had one too. I feel more sensitive to them now and I need to find a hat that will fit my big head. I never really felt that I had a big head but I guess with Cowden’s you have a big head. I vaguely remember growing up sort of having issues with hats fitting in softball but nothing out of the ordinary. I mean I had my hat in games and for pictures it was no big deal. As an adult it seemed a bit more prevalent but I never gave it much thought. And then I found out from the geneticist that having a big head is one of the symptoms of CS. Big freaking whoop.
I was supposed to go to Disneyland today and that fell through. I got a weird/new/bad/scary headache last night that came with a nice plate of nausea. And with the heat, upon waking I just felt I needed to stay close to home today. So, I passed on it. I’m so sad because I haven’t been since February and that’s just way too long.