I’ve pondered if I was going to post photos of my head. I decided that I am, going along with my voice having value. I found some that Mom took last September and October. But I still haven’t gotten the grasp of WordPress 100% so I can only add one picture at a time. GAH. It’s funny because looking at this picture now I’m like, “Ummmm, Dr. K how come it’s crooked?” But the freaking tumor was 5 cm.
I don’t get to ask those questions and as my Mom said…he was busy worrying about my brain, so whatever he needed to do he needed to do and got to do. I had complications during the surgery, bit almost entirely through my tongue, etc. etc. But what do you think might happen during a 13 hour surgery? It could have been worse…my Dad used to always say that. Things are tough (And HECK YAH they are!) but they sure could have been worse than they are. Yes I have a genetic condition called Cowden’s Syndrome that is so freaking rare most doctor’s haven’t even heard of it. Most doctors don’t even know what it is. But I had a surgeon who was VERY GOOD and got out most of the tumor that he could without causing me more harm. Thank you Dr. K. I miss you! I’m doing OK and I’m getting stronger every day. I’m a survivor and Lhermitte-duclos & CS isn’t going to get me down!