Links/Pages

It fascinates even me to read about Cowden’s and LDD.  I found 2 more links just now and I added them to the pages above if you wanted to do some light reading.  HAH!

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3 thoughts on “Links/Pages

  1. Hi Heather! Thanks so much for sharing. My husband has not officially been diagnosed with LDD or Cowdens, but 2 different radiologists believe my husbands lesion in his right cerebellum is LDD. He took a PTEN test last week and we should have results by August 15. His journey began last November when he was almost comotose due to brain swelling. We have done a biopsy yet but he did have to get a VP shunt for the hydrocephalus. I will let you know the results of his PTEN test when we get them.

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