If you bet on Cushing’s you would be wrong

My primary doctor says I do not have Cushing’s Syndrome.  So, while of course this is GREAT news, I’m still uber-frustrated.

I was hoping that was the problem, since I didn’t respond to the Desmopressin.  After 5 days I felt no difference on it.  And once I stopped the protein drinks (that I sometimes would have 2x a day since I’m working on cutting calories) my symptoms did get markedly better.  I thought I was in the clear.

No dice.

Guess who gets to do yet another 24 hour urine collection?  Oh yah.  This girl.

It all came crumbling down this morning with Dr. B.  I am so frustrated.  I’m not losing weight.  I work out 4-5 days per week, my cholesterol is creeping up, I mark my calories on an app on my freaking iPod.  I feel so much pressure about needing to remember which tests needs to be done when, and what if I forget to remind one of my doctors that it’s time for X test?  Basically it does go back to my primary, and thankfully we kind of hammered most of that out this morning.  Between the oncologist who is ONLY CANCER SPECIALIST (which I do not have thankfully [!], so what am I allowed to ask her then?), and my endocrinologist, and the neurosurgeon, and the neurologist, and my primary…there are many irons in the fire.  My fear is that with all these irons in the fire, something (or someone) is bound to get burned.


That’s a lot of pressure.

Plus, I’m peeing all the live long day.

I’m soooooooooooooooooooooooooooooooooooooooooooooooo tired today.


I’m going to the gym.

More soon.


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