Now it seems like I need to see the plastic surgeon again. I already saw him months ago, petrified and so unsure of what’s going on around me.
With all this hoo-ha in the news about Angelina, etc. I feel like I need to see Dr. what’s-his-name again (I really don’t remember his name and I can’t freaking believe I’m thinking about ANOTHER surgery. The kicker is that this is a “risk-reducing surgery”. Dang. Are you kidding me? “Risk-reducing”? I already have to get rid of my uterus, and then this?!)
I know I need to ask for pictures of his reconstruction work, for sure. I just can’t wrap my brain around what will happen when I’m 55 ish and no longer “need” breast MRI‘s. I can’t get a straight answer from the oncologist, well, maybe she doesn’t know. Maybe things (in medicine and rare diseases) will have changed and there will be more advancements. High-risk is high-risk. There’s no getting around that. So what do I do? “Wait” to see? Be proactive now? 85% chance of breast cancer is pretty heavy.
But one of the many things that sucks about Cowden’s Syndrome is that NO ONE KNOWS. The oncologist doesn’t KNOW. She’s a cancer doctor. Not a rare disease doctor. She only wants to talk cancer stuff, which I DO NOT HAVE! (But YAY though! But that doesn’t help me out when I have questions.)
And I have a lot of them.