Control. Thou hast none.

This week I have worked on a blog post about control, or lack thereof.  I never considered myself to be a controlling person; not by a long shot.  But Lhermitte-duclos Disease and Cowden Syndrome teach me that I CONTROL NOTHING.

I have quite a bit to say about this and all week I was planning on writing this morning.

Then, I woke up with another vertigo episode.  Very severe.  Is my cerebellum getting angry?  Tired?  Irritated?  Is there something going on with the brain tumors?  My gut says, “Oh no.  They haven’t grown in 3 years, so I’m in the clear.” 

However, another part of me says, “You haven’t had vertigo (like this, or ever) since the brain surgeries.  This would be right on track.”

My neurologist is out of the country.  But, the MRI he called for a few weeks ago is in process of getting approved/scheduled.  So then there’s that.

PS, please check out my advocacy campaign and consider buying a shirt if you can.  Thanks!


2 thoughts on “Control. Thou hast none.

  1. Ugh. Waiting makes absolutely NO SENSE. I’m so sorry you have to live in the “don’t know” while waiting for insurance companies to decide how much they’ll pay. grrrrrrr…..

  2. Not feeling like you have control over anything is a feeling most don’t truly understand. Waiting seems so ridiculously unnecessary thing in today’s world, especially for those of us with brain tumors. Thinking of you.

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