Face the music

Sometimes, I don’t care for Cowden Syndrome.  I don’t care to face all the organ stuff that comes with it, you know?  Well, actually…I never care for Cowden Syndrome, except that it’s connected with me some amazing warriors who know what this life is like.  Sometimes, I just want to stay in the bed with the covers over my head and wish for unicorns and rainbows.

So this morning…that’s what I did.  Missed church and everything (awful – I know).  But, my body and mind were calling for it.  I don’t want to go to the surgical oncologist tomorrow and hear the words, “Esophagus, cancer, resection, polyps”, etc.

I don’t know how to end this post tonight; I’m scared of what my future holds with Cowden Syndrome and I’m scared about tomorrow.  I try to be positive most days, but tonight I’m on my pity pot and that’s where I’ll be ’till tomorrow, if you need me.

2 thoughts on “Face the music

  1. Stay positive don’t let Cowden syndrome win, kick its ass and all that it brings . since I came across you on twitter I admire you and look up to you and you make me think differently on Cowden syndrome for me and my son I admire and have so much respect for you you are amazing . keep fighting hugs and love sent to you. X

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