Today’s appointment wasn’t too bad, if I’d thought better about it I would have known today wasn’t going to be all that major. But, still. Everything about Cowden Syndrome is major, so what the freak do I know about all these appointments, anyway? I guess my point is I shouldn’t be downplaying my emotions. I’m deserved of a freak out day every once in a while. Anyway, on to today:
Basically today’s appointment was to check in and make sure I wasn’t falling through the cracks with paperwork, referrals, approvals, etc. on the esophageal mucosal resection (or, getting a 2nd opinion on my esophagus and innumerable polyps.) So, nothing really happened today. 🙂 Whew! Doesn’t mean that I’m out of the woods and I know that, but I did work myself up for nothing. Eeeesh. Oh well, at least I know that this oncologist is working on keeping the ball rolling on my behalf.
Another thing I forgot to write about was this test I am having next month called a PEM scan. Dr. S said this is kind of a “two-for-one” scan because while it checks my Dairy Queens for cancer, it also checks my entire body. And, we can’t forget that I’m 85-something % lifetime risk of breast cancer. So, while some doctors may say, “esophageal cancer isn’t on the books” (which the first G.I. doctor did who didn’t even want me to have the freaking EGD in the first place!) we just can’t forget. Cowden Syndrome never lets me forget cancer. Never let’s me forget anything, really. And, just because there’s “not a lot of data” on esophageal cancer doesn’t mean I won’t/can’t get it. It just means it’s not too common. And, we all know what that means. Wait. I don’t even know what that means. No one knows what anything means with Cowden Syndrome. I just do the best I can with what I have. Plain and simple. So, please. Bear with me when my emotions go up and down…I’m trying.
And all this means I’m due a freaking vacation.