Today’s the day! World Rare Disease Day 2016. I had an idea of something to do at my local hospital today, but sadly they denied approval. Nevertheless, while Social Media is a great outlet, I still hope to do something else today. Stay tuned!
In case this is your first visit to my blog, I am living my life with 2 Rare Diseases: Cowden Syndrome, and Lhermitte-duclos Disease. Cowden Syndrome is caused by a mutation in the PTEN gene. Lhermitte-duclos Disease is a rare brain tumor called gangliocytoma.