World Rare Disease Day 2/29/16

Today’s the day!  World Rare Disease Day 2016.  I had an idea of something to do at my local hospital today, but sadly they denied approval.  Nevertheless, while Social Media is a great outlet, I still hope to do something else today.  Stay tuned!

In case this is your first visit to my blog, I am living my life with 2 Rare Diseases:  Cowden Syndrome, and Lhermitte-duclos Disease.  Cowden Syndrome is caused by a mutation in the PTEN geneLhermitte-duclos Disease is a rare brain tumor called gangliocytoma.

wrdd-2016-care

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