Hi guys. Man oh man. I can’t believe this week has finally ended! I’m bummed, but thankful. I had such high hopes for this week. Remember this post? Well, all heck broke loose right afterwards.
Monday: I went on a road trip (see this post), and it was something I was looking forward to for months. I found a neat place from Yelp, and had nothing else planned! I had an entire afternoon and evening that was all mine! Nothing on my schedule had anything to do with brain tumors or cancer syndromes. I explored a new city. I found a neat thrift store and bought a few books. I went shopping. Found a place to have dinner. It was so incredible. I didn’t think about that night at all. I treated myself to frozen yogurt. I went back to my room and watched America’s Got Talent and started to read one of my new books. I stayed up late. I woke up early. It was grand.
Tuesday: I explored a few nearby cities a bit more. I found an incredible doughnut place and ate the most incredible Salted Caramel doughnut known to man. On my drive home I found a small place to eat sushi. I was looking forward to enjoying my drive home. Then, the bottom fell out. My mom called me and said she had a missed call on her cell phone from the “Advocacy” firm representing me in my Disability claim. (No one from the office called MY cell phone. No one from the office had/has contacted me since mid-June. My hearing is AUGUST.) Within a few minutes I received a text message from the office stating I need to call them urgently. (NOTE: I have e-mailed the firm many times since June. No one has responded. I have called my “Case Manager” and left many voice mails. She has never responded to my calls.) Of course, I called the firm. I got her voicemail. Are you surprised? I’m not. I checked my e-mail in the midst of this I also received an e-mail message from said firm. In it, they said that since they have been “unable to get a hold of me” they will delete my claim from SSA if I don’t contact them within 10 days.
I called the firm AGAIN and bypassed the system. I demanded the operator transfer me to a live person. I didn’t give a rip that my “Case Manager” was on the phone. After waiting several minutes on hold, she came back to me and said that no one was available to help me. I explained to the operator the notices I had just received via text and e-mail. Didn’t matter a damn bit.
I lost it. I was in a strange city. In a strange place. I pulled over and parked at a random store. I sat at an outside table crying my eyes out. Feeling hopeless and suicidal. This is the firm I chose to represent me in the biggest and most important point in my life (applying for Disability). And this is how they are treating me.
To be continued….