Wow. I can’t believe this month is already 1/2 over! That’s so crazy.
I was looking at my calendar this morning and was a bit overwhelmed with all I have going on:
- Colonoscopy and EGD
- New therapist appointment
- Endocrinologist appointment the end of the month
- I had 2 different Neurology appointments scheduled, and they both fell through. (It’s mildly concerning to me since I am living with 2 brain tumors and have had 2 craniotomies. But, I digress. For another post.)
I guess my point is that I’ve been forced to learn how to advocate for my health. And, that’s one of my biggest takeaways since diagnosis of the brain tumors. I get to share my experiences with you, and hopefully at least 1 thing I’ve experienced these last 5 years may be of some help to you. To someone. Somewhere. That helps me feel that none of my medical experiences have been for naught.
I could tell you horror stories, and rest assured, I will continue to share them. (Gross negligence of privacy issues to start.)
But, not tonight. I am still traumatized from the colonoscopy and EGD last week. I’m still irate for not being able to see a neurologist. However, the main thing is even though I must endure numerous screenings and procedures (and those aren’t going away any time soon), I will not tolerate unacceptable behavior. I will not waste my time waiting in exam rooms for doctors who don’t listen to me. This is my life, this is my health; if you’re not meeting my medical needs, I refuse to endure and I will move on.
I never would have done that in my previous life. I would have just gone along with things, because I had to. Well, you know what? I don’t have to do anything. I don’t have to do anything I don’t want to do. Has the diagnosis of Cowden Syndrome and Lhermitte-duclos Disease made me stronger?