Daily Prompt [Sleeve] – AND THE EVER-LOVING SYSTEM IS BROKEN!

Hello.  My name is Heather and I would like to welcome you to my blog.  Today’s post is full of anger and bitterness; thank you for joining me!  🙂

I have no connection to the daily prompt except that sleeve reminds me of peeved.  Pissed.  Angry.  Furious.  Frustrated.  MAD.  Irate.  And, we will continue from here:

I have 2 brain tumors and a Rare Disease called Cowden Syndrome, which you may or may not know.  What concerns me more than CS is the brain tumors I have, called Lhermitte-duclos Disease, or Gangliocytoma.  I’ve already had 2 crainiotomies and am currently experiencing more symptoms that are annoying and down right scary.  A few years ago I applied for disability, appealed, had an “advocate” (and I use this term loosely because I got snowed and he is a terrible excuse of a man) and after almost 4 years of the entire process the Judge finally denied me.  Period.  End of story.  Do not pass go and do not collect 200 dollars.  In part, he denied me because I was “calm and collected” in his courtroom and after my hysterectomy in 2013 I told a doctor on my team “I wanted to go back to work.”  Ugh, thinking about this again makes me nauseous and I want to spit fire.

Since the outcome, and well actually since I started to feel any semblance of a normal life (probably around 2012) I have worked my ass off trying to find a job(s) so that I can surviveDo you know how expensive it is to LIVE though?  If you have a job, be grateful.  If you have money, be grateful.  Be grateful for what you have.

Anyway, a few months ago I found another part-time job that is flexible and they understand my health issues, the brain tumors, the good days and bad days, the daily headaches, etc.  I am very lucky to have found this job.  And, guess what?  I made “too much money” in April and May and will lose my state medical coverage the end of this month.  WHAT IS WRONG WITH THIS PICTURE?!

And as I was running errands earlier today I ran across the booths offering FREE CELL PHONES TO ANYONE (who qualifies, whatever).  WHAT ABOUT ME?  WHY do I fall through the cracks?  I will not debate immigration concerns, illegal or legal, because that’s not my job nor is that my concern today.  MY CONCERN IS ME.  MY LIFE.  MY FUTURE.  I AM AN AMERICAN CITIZEN AND GETTING DIAGNOSED WITH 2 BRAIN TUMORS HAS DESTROYED MY LIFE.  WHY AREN’T I AS IMPORTANT AS OTHER PEOPLE?????????????????????????????????????????????????????????????????????????????????????

May is brain tumor awareness month.  Brain tumors are evil bastards that ruin lives.  Mine, included.  Please visit these links to find ways you can help.  Thank you ❤

National Brain Tumor Society

American Brain Tumor Association

Global Genes

 

 

 

 

 

 

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