Hello. My name is Heather and I would like to welcome you to my blog. Today’s post is full of anger and bitterness; thank you for joining me! 🙂
I have no connection to the daily prompt except that sleeve reminds me of peeved. Pissed. Angry. Furious. Frustrated. MAD. Irate. And, we will continue from here:
I have 2 brain tumors and a Rare Disease called Cowden Syndrome, which you may or may not know. What concerns me more than CS is the brain tumors I have, called Lhermitte-duclos Disease, or Gangliocytoma. I’ve already had 2 crainiotomies and am currently experiencing more symptoms that are annoying and down right scary. A few years ago I applied for disability, appealed, had an “advocate” (and I use this term loosely because I got snowed and he is a terrible excuse of a man) and after almost 4 years of the entire process the Judge finally denied me. Period. End of story. Do not pass go and do not collect 200 dollars. In part, he denied me because I was “calm and collected” in his courtroom and after my hysterectomy in 2013 I told a doctor on my team “I wanted to go back to work.” Ugh, thinking about this again makes me nauseous and I want to spit fire.
Since the outcome, and well actually since I started to feel any semblance of a normal life (probably around 2012) I have worked my ass off trying to find a job(s) so that I can survive. Do you know how expensive it is to LIVE though? If you have a job, be grateful. If you have money, be grateful. Be grateful for what you have.
Anyway, a few months ago I found another part-time job that is flexible and they understand my health issues, the brain tumors, the good days and bad days, the daily headaches, etc. I am very lucky to have found this job. And, guess what? I made “too much money” in April and May and will lose my state medical coverage the end of this month. WHAT IS WRONG WITH THIS PICTURE?!
And as I was running errands earlier today I ran across the booths offering FREE CELL PHONES TO ANYONE (who qualifies, whatever). WHAT ABOUT ME? WHY do I fall through the cracks? I will not debate immigration concerns, illegal or legal, because that’s not my job nor is that my concern today. MY CONCERN IS ME. MY LIFE. MY FUTURE. I AM AN AMERICAN CITIZEN AND GETTING DIAGNOSED WITH 2 BRAIN TUMORS HAS DESTROYED MY LIFE. WHY AREN’T I AS IMPORTANT AS OTHER PEOPLE?????????????????????????????????????????????????????????????????????????????????????
May is brain tumor awareness month. Brain tumors are evil bastards that ruin lives. Mine, included. Please visit these links to find ways you can help. Thank you ❤
American Brain Tumor Association
hopeforheather 
Posts like this make me very glad to live in Canada.
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