Ugh. I saw my new primary doctor yesterday. Such a surreal experience. Of course I know that my original doctors (since diagnosis) can’t be with me forever but waaahhh. I miss my olddddd doctor. She knew me. It was easy. And, to be honest, in stating my history for this doctor I didn’t quite realize how much of a hot mess I actually am. 🙂 I am a lot.
Currently, I don’t have an oncologist which really sucks balls. My previous oncologist took the burden from my shoulders and was responsible for managing all of my procedures: mainly coordinating my colonoscopies, kidney scans, etc. But since I have different insurance now (which also sucks eggs terribly, but that’s for another post) the “powers-that-be” will not authorize an oncologist because “I do not have cancer”. Welp, hey folks let me tell you something: I’m not trying to get cancer so can you get on board to help me CATCH it before it strikes?!
Waiting to hear about my EEG from a few weeks ago. Just followed up with the Neuro so we’ll see. I have learned that not hearing from the doctor, or the whole “no news is good news thing” doesn’t apply all the time with Cowden Syndrome and Lhermitte-duclos Disease.
I know things take time. Blah blah. I get it.
It’s just a lot. It’s a whole dang lot and I’m not sure how I’m doing it.
How are you, though? Read any good books lately? 🙂 I’d love some recommendations.
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