Mumbo Jumbo

Life is happening very quickly.

Usually this overwhelms me to no end.

Tonight I find I need to write a bit and then get to bed earli(er) than usual.

I have had a bunch of appointments these last 2 months and I find myself struggling greatly to keep it all straight. Between labs with my endocrinologist and a “spot” in my thyroid bed that we STILL don’t have a definitive answer on what it is…to reviewing my EEG with neurologist and MRI with my neurosurgeon. I told my mom last week that it’s really good I didn’t suffer (more) brain/cognitive issues post brain surgeries because SHE would have to be the one managing all these appointments and scans and results!

It’s a whole lot.

Sometimes I just need to get on here and just say that.

Cowden Syndrome is a lot.

Lhermitte-duclos is a whole effing of a lot.

I know there’s no handbook or manual to manage Chronic Illnesses but imagine how much simpler life would be if there were one!

What would you include in your book? I think I would be sure to include watching a WHOLE lot of 90 Day Fiance! (I’m kinda obsessed, tbh). 🙂

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