Hello friends and family: I know it’s been a hot minute that I have updated! I wish I could say it’s because my life is going smooth and there’s nothing to update on my medical status. 🙂 Sadly, that’s not the case. So, here I am.
I often say the reason why I continue this blog is because *here is my safe place to vent. My few friends don’t want to be burdened with my troubles, as they have their own to deal with. I should probably start a YouTube channel because then I could safely vent to my heart’s content. If I am blessed enough to be married one day I sure hope my companion *wants to help ease my burden and isn’t turned off by them. I am a lot. Rather, Cowden Syndrome and Lhermitte-duclos Disease and Thyroid Cancer, et al. are a lot. But, alas that’s for another day.
The last 2 days have had me running around like a chicken with its head cut off. I spent over an hour yesterday morning on absolutely worthless phone calls. No one seems to do their damn job and I get drug into the middle of it. I have a life worth living, and honestly *none of my energy and time should be spent wasted on medical people not doing their damn job. Why do I have to call so-and-so to find the answer? Oh, and BTW I called you with the answer and you said I was wrong and I was given wrong information. And this crap goes on and on. And, as of this evening, there still isn’t a resolution of what I am supposed to do and how I am to get my blood drawn with this new doctor. Establishing care with a new doctor is just as bloody hard as when I got diagnosed!
Then today I had O.T. for my trigger finger (thumb) that I had surgery on in August. Today was my 3rd visit and one of the treatments (electrical something) ended up burning my incision and I have 4 blisters on top of the scar. Good times.
Guys, this is a lot.
I have been walking a bit more the last few weeks, but man. I need a vacation. (Who doesn’t, right? Freaking 2020)….who’s up for a road trip to Vegas for the weekend?
hopeforheather 