Good evening, or just scratching the surface tonight

Hello friends and family: I know it’s been a hot minute that I have updated!  I wish I could say it’s because my life is going smooth and there’s nothing to update on my medical status.  🙂  Sadly, that’s not the case.  So, here I am.

I often say the reason why I continue this blog is because *here is my safe place to vent.  My few friends don’t want to be burdened with my troubles, as they have their own to deal with.  I should probably start a YouTube channel because then I could safely vent to my heart’s content.  If I am blessed enough to be married one day I sure hope my companion *wants to help ease my burden and isn’t turned off by them.  I am a lot.  Rather, Cowden Syndrome and Lhermitte-duclos Disease and Thyroid Cancer, et al. are a lot.  But, alas that’s for another day.

The last 2 days have had me running around like a chicken with its head cut off.  I spent over an hour yesterday morning on absolutely worthless phone calls.  No one seems to do their damn job and I get drug into the middle of it.  I have a life worth living, and honestly *none of my energy and time should be spent wasted on medical people not doing their damn job.  Why do I have to call so-and-so to find the answer?  Oh, and BTW I called you with the answer and you said I was wrong and I was given wrong information.  And this crap goes on and on.  And, as of this evening, there still isn’t a resolution of what I am supposed to do and how I am to get my blood drawn with this new doctor.  Establishing care with a new doctor is just as bloody hard as when I got diagnosed!

Then today I had O.T. for my trigger finger (thumb) that I had surgery on in August.  Today was my 3rd visit and one of the treatments (electrical something) ended up burning my incision and I have 4 blisters on top of the scar.  Good times.

Guys, this is a lot.

I have been walking a bit more the last few weeks,  but man.  I need a vacation.  (Who doesn’t, right?  Freaking 2020)….who’s up for a road trip to Vegas for the weekend?

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