Oh my. I could fill an entire blog of pictures of things that are beloved to me. What first is brought to my mind is our beloved Prophet, Thomas S. Monson, recently passed away. I remember when President Hinckley passed away and how painful that was. This loss is the same yet different.
The 2nd thing brought to my mind, (besides my family of course) is my boy Shadow. I am going to start crying as I type this, so I will keep this short. He had a rough life before us. He lived (and somehow survived) on the streets for over 10 years. He is now waiting for me on the Rainbow Bridge as of this past December. I am minutely comforted in this loss by reminding myself that during the last year of his life he was loved, fed, protected, and a host of other things we were able to give to him.
I miss him terribly.
I suppose it’s a good to focus on other things besides brain tumors and hereditary cancer syndromes. But, to be honest, today isn’t that day.
We had to put my cat to sleep on Saturday. I am devastated. Shredded. Torn up. Ruined. I cannot describe the intense bond I had with this boy. He had been abandoned, and in this past year we fed him and gave him shelter and love. It was only about 6 months ago, when we knew he was losing his eyesight, that we brought him in our house full time. He was loved. So, very loved.
I will miss you Shadow every moment of every day. Until I see you again. ❤
I didn’t want to do much ranting or complaining as of late. Because news. Yet, I have this blog and continue to share because I hope I can educate ONE PERSON about Cowden Syndrome who might have never heard of it before me. (Like the technician who did my mammo who’d worked in healthcare 20+ years who’d never heard of a PTEN mutation.)
One of the signs or symptoms of CS is a large head, macrocephaly. (NOTE: I can’t tell you how many times Post-diagnosis I’ve asked my Mom, “No one said I had a big head? No one made mention? Anyone? Nothing?”)
I can connect the dots in my past NOW, of course, never finding a hat that fit right, etc etc. Never thinking it was a sign of THIS!
Moving on: I have to now use a sleep mask. I’m not mad about it, I really actually love it now. However, what I AM kinda made about is this Disney sleep mask doesn’t fit! I’ve tried it a few nights already and my temples/forehead pulse and I can’t sleep. This wasn’t a KID sleep mask! It was marketed/packaged as ADULT, meaning one size should fit ALL.