new!

Check out the new custom t-shirt I just created!

Take a look at my entire store here.  What other items would you like to see?  I am doing all I can to be financially independent.  Please consider buying a shirt if you can.

Thanks for looking!

 

 

Advertisements

I’m trying to avoid bankruptcy at all costs. Will you help please?

I created this teespring store to raise money for my living expenses plus to raise awareness for Cowden Syndrome and Lhermitte-duclos Disease.

Take a look at the new shirt I created just now!

.

.

PS…if you know anyone that creates artwork or is willing to donate their time to help me create more shirts, please contact me!  Thanks!

.

.

Click here!

New custom item!

Check out this link to see some new items in my storefront.

I am very thankful for your support.

Updates

I think I have posted some crowd funding links here in the past.  But, there have been a few changes to the links so I wanted to do a new post.

I created a storefront on Teespring a while ago.  I created custom t-shirts that have a two-fold purpose.  They can be conversation starters:  “What does ‘Ganglio What’ mean?  What does CHAMP signify?”

Maybe you don’t know the answers to those questions technically, but since you read my blog (hopefully continue to do so, hehe) you could say, “Oh.  A friend of mine has a brain tumor called Gangliocytoma.”  OR, “I follow a girl on Twitter who’s username is @ZHeatherChamp and I think she’s a champ too!” (insert smiley face here.)

If you bought one of those shirts you are helping bring awareness to my blog.  Which in turn brings a conversation about Rare Diseases.  Or brain tumors.  Or hereditary cancer syndromes.  Any of that!  Or all of that!  Win, win right? (Reason #1)

Reason #2, which is kind of a big deal, too.  I receive part of the purchase price to help me navigate my medical bills.  I won’t rehash the trauma.  It’s real and it’s bad.  😦

Thank you thank you thank you!  I’m forever grateful.

 

Thank You, #2

Someone bought one of my shirts

wherever you are, whomever you are:  Thank you so much.  You are helping me share my story.  You are giving me strength to stay strong.

I am so grateful.

Love, Heather

PS.  If you would like to find out other ways you can support my Rare Disease life, please check out the “DONATE” page above or these following links:

Rare Disease Awareness storefront

My GoFundMe site

New Fundraiser! Please help!

Hello!  Please check out my new storefront.  I have added more shirts with a variety of colors and sayings.  Each one helps me financially plus helps to bring awareness for both rare diseases I have.

Thank you for your help!

CLICK HERE

3a89e6355c1e637

Please help me reach my goal! 

Hi! I’m doing another t-shirt fundraiser to help me with my medical bills. But this will also help me to spread awareness for the rare brain tumors I have AND #btsm (Brain Tumor Social Media). Please consider buying a shirt if you can. This is my 3rd attempt as my previous 2 campaigns didn’t tip because I didn’t reach the required minimum order of shirts. 

Thank you everyone for your continued prayers. I saw a neurologist this morning, which was a wasted 2 hours I’ll never get back. I will write about that soon. Good night! 

Is it really almost June?

I was just thinking to myself a few days ago, “Man.  I can’t wait for Fall.”  Coolness everywhere is what this girl wants!

Anyway, I know it’s been a while since I checked in.  Been really busy these last few weeks, which of course is a GOOD thing, but then my “recovery” after the “busy-ness” can take me a few days.  Even after 5 years, I am still constantly learning how to manage my life now.  Granted, I probably wasn’t doing too hot of a job before diagnosis.  Now, add all this to boot?  You see where I’m going, right?  Also, thank you to everyone who shared my crowdfunding campaign.  The deadline is in 4 days and I didn’t reach even 50% of my goal.  Darn.  Maybe I’ll try again another time.

I went out-of-town for a few days this week,  been able to sub for a few days too.  Fitting in exercising somewhere too.  Sometimes, managing the medical stuff really is a full-time job.  I had a few appointments a few weeks ago, so I plan to be writing about those soon.  And, remember when I said I went out-of-town?  Here’s a quick hint as to where I went:

PTNpinkHope you all have a great weekend!

Crowd funding effort

Hello friends, family, and followers:

Will you please take a look at this link and consider buying a shirt if you can?  If you aren’t able to buy, please please share the link.  I am very grateful for your help.  Thank you.

Love, Heather