This isn’t a Wordless Wednesday

I just am missing Disneyland and Disney’s California Adventure something awful! ūüė¶

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Taking Stock (Christmas 2016)

I’ve borrowed this from This Mom’s Gonna Snap a few times and wanted to do one more before 2016 is up.

Making: My bed.
Cooking: Does helping my mom make Christmas goodies count?
Drinking: A Skinny Girl Protein drink.
Reading: The Lucky One by Nicholas Sparks.
Trawling: The Internet for a Harvey’s Seatbelt bag. (I can dream, right?)
Wanting: To be healthy.
Looking: For a way to not feel like a frump for 2017.
Deciding: If it’s time to downsize some clutter in my room.
Wishing: I could go to Disneyland. Or, to be honest, Disneyworld.
Enjoying: Quiet mornings.
Waiting: For my head to clear.
Liking: Donny Osmond Christmas music.
Wondering: What Christmas Clearance deals I can find.
Loving: Grace and Frankie!
Pondering: Where I will be in 40 years. Alone? Healthy? What will the brain tumors be doing?
Listening: To the wind gusting outside.
Considering: How I can make 2017 my best year?
Buying: Healthy foods.
Watching: Days Of Our Lives
Hoping: For good health.
Marveling: How quickly Christmas flew by!
Cringing: About how people are willing to sever relationships over differing politics
Needing: To go for a walk.
Questioning: How people can abandon their animals.
Smelling: Lavender lotion.
Wearing: Christmas socks!
Following: More bloggers who champion Rare Disease Awareness.
Noticing: I need to up my water intake.
Knowing: I have a few thank you cards to write this week.
Thinking: About how I will incorporate more exercise into my life.
Admiring: How strong people living with Cowden Syndrome are!
Getting: The itch to travel somewhere.
Bookmarking: More books. I love the Goodreads app!
Disliking: Clutter.
Opening: More books!
Giggling: At myself.
Feeling: Sleepy.
Trying: To not miss Halloween at Disneyland too much.
Hearing: The TV.
Celebrating: My birthday soon!
Pretending: That my life isn’t as hard as it as sometimes.
Embracing: Quiet. Rest. Family.

That brain scan life

Yesterday morning I had another scan. ¬†I wish I knew how many I’ve had since diagnosis. ¬†(I bet it’s 10X more than I think.) ¬†You know, I think hope wish that every time I go it’ll get easier. ¬†It doesn’t.

I have to ask the MRI technician every time the following questions:

  • What if there’s a power outage while my scan is happening?
  • What if something happens to you while it’s happening?
  • What if there’s an earthquake while I’m in there?
  • What if there’s a natural disaster? ¬†Or an emergency at the hospital while I’m in there?

The technician is pretty funny; he knows me by name and me him. ¬†He always talks me off a ledge, which I appreciate. ¬†Plus, I’m usually medicated so that helps 150%, too.

I practiced my visualization: ¬†I am at Disneyland. ¬†I am at the front entrance getting my ticket when the scan begins, then I start¬†to make my way through the entire park. ¬†(It’s a neat little tip that works for me!)

Just like when I see the oncologist for my breast exam and think, “Is this the day she’ll find a lump?”, I found myself thinking yesterday, “Is this the day there will be growth on either tumor?”

We shall see.

Is it really almost June?

I was just thinking to myself a few days ago, “Man.¬† I can’t wait for Fall.”¬† Coolness everywhere is what this girl wants!

Anyway, I know it’s been a while since I checked in.¬† Been really busy these last few weeks, which of course is a GOOD thing, but then my “recovery”¬†after the “busy-ness” can take me¬†a few days.¬† Even after 5 years, I am still constantly learning how to manage my life now.¬† Granted, I probably wasn’t doing too hot of a job before diagnosis.¬† Now, add all this to boot?¬† You see where I’m going, right?¬† Also, thank you to everyone who shared my crowdfunding campaign.¬† The deadline is in 4 days and I didn’t reach even 50% of my goal.¬† Darn.¬† Maybe I’ll try again another time.

I went out-of-town for a few days this week,¬† been able to sub for a few days too.¬† Fitting in exercising somewhere too.¬† Sometimes, managing the medical stuff really is a full-time job.¬† I had a few appointments a few weeks ago, so I plan to be writing about those soon.¬† And, remember when I said I went out-of-town?¬† Here’s a quick hint as to where I went:

PTNpinkHope you all have a great weekend!