The Struggle Bus rolls along

I went an entire month without writing.  Buh-bye November!  See ya wouldn’t want to be ya!

I am still struggling:  Don’t have too much to update otherwise.

  1. Finally had the fine needle biopsy on my (empty) thyroid bed last week.  This was my 2nd one, so I was (properly, or so I thought) sedated and knew what to expect.  Nope.  No.  I was wrong and I don’t win.  The only positive thing was that I knew this technician, but not the doctor, and I think the tech (tried) to do me a solid by “talking” about things with the doctor – that I was able to pick up (if you get my drift….) I won’t go to the bad place here yet, because that’s been happening enough in my mind for the last 10 days already.  I don’t have a diagnosis yet, and I can speculate til the end of time because while I do know some things, I must wait to hear from the endocrinologist.
  2. Something is terribly wrong with my shoulders:  I speculate rotator cuff issues?  One of my doctors called in some pain medicine for me, and I will be honest with y’all here, Tramadol isn’t all that bad! I told my Mom a few nights ago that I’d almost rather have brain surgery again than this shoulder pain.  For real y’all.  No fun.
  3. Sometimes it’s quite overwhelming trying to manage my schedule.  In the next few weeks I have to deal with all the above, plus my brain scan and neurosurgeon appointment!

No words of wisdom today.  No positivity or self-care mumbo jumbo.  Writing.  Watching Ghost Adventures.  Water and early to bed.

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Connect the dots

Sometimes, it’s fun to look back at from where I came.  My real medical life began in 2003 when I got diagnosed with thyroid cancer.  I hadn’t really been all that sick prior to that.  Little things here and there, had my tonsils removed when I was 19, that’s about it.

Obviously I can connect the dots now and see how most everything from birth-2003 and then 2003-2011 screamed Cowden Syndrome, but whatev.  Did you know that thyroid cancer is one of the “signs” (my words) of Cowden Syndrome?!

I saw the endocrinologist this week.  With all the ones I’ve been through, not including one specific one who was my doctor for EIGHT YEARS, this current one is pretty good.  I’ve had better (see previous sentence) and I have seen much worse.

People can’t seem to leave my TSH alone.  It’s either too high; too low; too whatever and we have to worry about blah blah blah.  I just KNOW how I feel when my TSH is a certain number.  Can’t you all leave me alone?  (NOTE:  Mild sarcasm.  I get it.)

I saw Dr. Endo this week.  He loves my TSH at 1. something.  I hate it.

I love my TSH around .10 or .20.  But, he doesn’t.

Anyway, more blood work.  Checking of my T3 or T4 or something.  I don’t know.  Then, I see Dr. Oncologist in the next weeks to check The Ladies.  

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What’s new with you?  🙂

I cried today

And sometimes, it just happens.  I don’t know why I was especially weepy today.  I am trying to just embrace and accept my emotions as they come.  I imagine tomorrow will be better.  It has to be.

Since last Friday, I have had appointments with the Neurosurgeon (no significant growth on either brain tumor!), Oncologist, Endocrinologist, Physical Therapist (thankfully the insurance approved a few more visits!) and Therapist.  Plus I have a temporary substitute job.  I think I just hit the wall today.

I cried at therapy.  A lot.  All this stuff came up about the brain tumors, not being able to do what I once could, feeling so overwhelmed with what is. I understand the importance of constant doctor appointments; to catch “in time” anything potentially life-threatening.  I just don’t seem to have accepted this life yet.  I don’t know.  I guess I still feel different from everyone.  Like the brain tumors and rare disease have put a target on my back.  It may not make sense to you, but it’s how I am feeling tonight.

Tomorrow has to be better.