If you don’t already know, I have a place on my blog where I’ve gathered links of PTEN/Cowden Syndrome information. I also wanted to share that there is a PTEN Hamartoma Tumor Foundation website: Please visit it often!
If you would have told me July 28, 2011 (the day after the first craniotomy) that on this day I would be working out with over 40 people and coordinated a week-long Rare Disease Day event – I would have told you to stuff it. There’s no way I ever could have imagined today…even on my best day after brain surgery! This was my first event but I tell ya – I’m hooked! Look out 2016, hopeforheather is coming for ya!
Together, with the help of the exercise studio I work out at and the support and generosity of friends, neighbors, and family we raised $434 for Rare Disease Awareness! The money will be donated to Global Genes Project and PTEN Foundation.
There’s so much running around in my mind that I don’t know where to begin to write. A humble thank you will have to suffice for now.