Today was rough. It was a very, very, very long day. I am so glad to be home. I guarantee that tonight will be PJs and in bed by 7 PM. For realzzz.


However, some good things happened today also. I think I’ve mentioned that Rare Disease Day is next week, 2/28/18. I had some custom bookmarks made with my blog information and was able to give them to several people today. I am very blessed to know some very good people and they (happily – I hope!) accepted the bookmark as I gave them a quick spiel about next Wednesday. I feel that any time I can have a conversation with anyone about Cowden Syndrome or Rare Diseases in general, it’s a great thing!

(I usually don’t even mention Lhermitte-duclos Disease because it’s a mouthful to say!) 🙂