Don’t forget…

Today’s appointment wasn’t too bad, if I’d thought better about it I would have known today wasn’t going to be all that major.  But, still.  Everything about Cowden Syndrome is major, so what the freak do I know about all these appointments, anyway?  I guess my point is I shouldn’t be downplaying my emotions.  I’m deserved of a freak out day every once in a while.  Anyway, on to today:

Basically today’s appointment was to check in and make sure I wasn’t falling through the cracks with paperwork, referrals, approvals, etc. on the esophageal mucosal resection (or, getting a 2nd opinion on my esophagus and innumerable polyps.)  So, nothing really happened today.  🙂  Whew!  Doesn’t mean that I’m out of the woods and I know that, but I did work myself up for nothing.  Eeeesh.  Oh well, at least I know that this oncologist is working on keeping the ball rolling on my behalf.

Another thing I forgot to write about was this test I am having next month called a PEM scan.  Dr. S said this is kind of a “two-for-one” scan because while it checks my Dairy Queens for cancer, it also checks my entire body.  And, we can’t forget that I’m 85-something % lifetime risk of breast cancer.  So, while some doctors may say, “esophageal cancer isn’t on the books” (which the first G.I. doctor did who didn’t even want me to have the freaking EGD in the first place!) we just can’t forget.  Cowden Syndrome never lets me forget cancer.  Never let’s me forget anything, really.  And, just because there’s “not a lot of data” on esophageal cancer doesn’t mean I won’t/can’t get it.  It just means it’s not too common.  And, we all know what that means.  Wait.  I don’t even know what that means.  No one knows what anything means with Cowden Syndrome.  I just do the best I can with what I have.  Plain and simple.  So, please.  Bear with me when my emotions go up and down…I’m trying.

And all this means I’m due a freaking vacation.



Fun Fact Friday 7/4/14 (Happy 4th of July!)

Today’s Fun Fact is from 2007-ish; years ago I had an annual pass to Disneyland and California Adventure.  (I sure miss those days.  Fun, fun times.)  One of my favorite rides at California Adventure is this ride.  I don’t know what makes this ride so special for me.  Many rides at either park are dark rides and while I do enjoy Splash Mountain with the best of you, there’s something special for me here.  It’s just one of my faves.

At the end of the ride Roz watches each car as they drive up and makes pertinent remarks to the passengers in the car.

NOTE:  I had long, curly dark hair back then.  (You’ll see why this is important in a moment.)

I was with 2 other people in the back row, and Roz said to me, “Girl in the back row?  I like your hair.” 

Me Time

I have always envied those people who vacation every year, whether it be to the mountains or the beach.  Just getting away for a time must be so relaxing.  Now, don’t get me wrong.  I have traveled in my lifetime; to Utah, Idaho, Washington D.C., but nothing really “official” as a vacation.

Well, I am changing that this year.  🙂

This coming July 27 will be 3 years since the first brain surgery.  I do not plan to be home on any July 27 (if it is remotely within my ability to do something about it!)

So.  I made myself a reservation for that weekend.  I’m not going to share where, yet.  🙂  Just know that I am thoroughly looking forward to going and to taking tons of pictures!

Campy (Photo of the day 7/7/13)


Nature humbles me.

My family went camping for the holiday weekend.  My time there was about watching my nephews enjoying their time.  No brain tumors.  No rare diseases.  No risks of cancer.  Just my family and this.

Last week this happened…(Photo of the day 10/1/12)




Location, location, location

I was able to visit the Los Angeles Temple yesterday.

It was just lovely.

Of course I took some pictures; if you look very closely you’ll see a tiny hummer sitting on the top of the tree.

Here’s just a sneak peak. 🙂


Another pretty (Photo of the day 9/3/12)

Love!  This view is down by the “Winnie the Pooh” ride (near Splash Mountain)…and while I never took the time to really look at it, the group of people I was with were stopped and I decided to pay attention to the nice view.  I’m still cleaning out pics from my phone from last weekend and will be putting them up as I get to them.  🙂


I have a real post comin!



Last weekend I vacayed (I just made up that word!) at My Happy Place & have edited a few pictures.  First one…have you ever had hot fudge in a cup?  Go to this place.  GO THERE NOW.  I am over the moon for this place.  I’ve never been to the one in San Francisco, but I don’t really care now that I’ve been to this one.  🙂  I went here once on Saturday and once on Sunday.  My rule now is that each time I go I am going to get a different item off the menu.  Think I can do it?

The second photo is my view from the Grand Californian.  This trip was my 2nd time staying here.  No words can really describe.

The bottom picture are some I snapped from the lobby.  I threw them together in this edit from an app on my iPod.  Turned out kind of OK.

But here’s where I hit the ground running and get back to the life of a person with Cowden’s Syndrome. Doctor appointment today. But here’s a few pics for your viewing pleasure. Hah!


What are you doing this weekend?


I’m hanging out at this place!

A room with a view

Here’s a pretty Oregon tree from last week. This is what I was surrounded with my entire trip! Didn’t realize how much I appreciated greeness. 🙂