Most days, Cowden Syndrome and Lhermitte-duclos Disease lay pretty quiet. Except for the constant doctor appointments and dizzy spells, that is.
I try to live as normal a life as I can. I exercise as often as possible. I volunteer weekly. Yet some days my medical status screams its ugly head and I’m knocked off my feet.
This week, I had had the following scheduled: New psychiatrist appointment, new neurologist appointment (because I was without care for a few months), and a colonoscopy and EGD.
I knew this week would be busy, so I tried to ready myself as best I could. But it’s only freaking Monday! Why are things coming unraveled already?! I received a call this morning from the neurologist’s office. The “doctor” (I use that term loosely) was reviewing my case and decided that she would not see me. You see, I had been under the care of another facility (within the same system, just a different city) but when their neurologist left the clinic I had to make other arrangements for my health care. Just because I have welfare insurance doesn’t mean my health suffers needlessly. I am my own advocate.
I explained the situation, but of course it fell on deaf ears. I was refused care. And, I 1/2 bet it was because she didn’t want to treat me. 2 brain tumors and another Rare Disease. I mean, who’d want to touch me with a 10 foot pole, right?
I lost it. I won’t go into details of what I told this young girl on the phone and what I think of this doctor. I didn’t cuss. I wasn’t rude. Just very expressive of how the decision of this so-called doctor is affecting my medical care. And, my Disability claim on top of that.
My life is in limbo enough. Now, add this neurology fiasco and I feel even more defeated then I do any other day of my life.
Happy Motivation Monday to you all!