Hi, I’m Heather. Welcome to my blog and I am so glad you found me! I am on a mission to bring awareness to Rare Diseases and brain tumors. I am living with a hereditary cancer syndrome called Cowden Syndrome, and 2 rare cerebellar brain tumors and to be honest, it freaking sucks.
I am broke and destitute, and was recently denied disability 3X (the Judge said I was “calm and collected” in his courtroom, and that was part of the reason he chose to deny me. Didn’t matter to him I have 2 active brain tumors in my cerebellum. But, I digress.)
I am a Rare Disease Advocate now, but before all this garbage I graduated from college and obtained my teaching credential. The plan was to teach Special Education. Today’s plan is to somehow avoid filing bankruptcy and stop using my credit cards (and my family) to survive. If you would be so kind as to look at my Teespring store you’ll see a way I am trying to earn money plus bring awareness for Cowden Syndrome.
I recently read that I should have a detailed ABOUT ME page. I don’t know quite how to do that, but this is my first step. 🙂 Check out my social media accounts also…Instagram and Twitter @ZHeatherChamp
I’ve been blessed with opportunities to share about Cowden Syndrome and Lhermitte-duclos Disease. I hope to be able to take part in more of these. Please see the links that follow:
Some fun facts about me:
- My favorite color is green
- Started application process December 2013 for disability. Was denied May 2017
- Favorite soap opera: “Days Of Our Lives”
- Favorite movie: “Grease”
- I HATE the words root, stump, moist, and stiff. And I HATE balloons.
- I love the Anaheim Ducks
- I want to take up bowling but with my balance and fine motor skills declining I don’t see this ever happening
- I am a Cat Mom – here are my girls:
Thanks much to photographybyjaana.com for my picture here and the on the media links.